NEWS & POSTS
I’ve been thinking a lot lately about Artificial Intelligence. Not just what it can do, but what it costs. Living with Multiple Sclerosis means my energy is limited, and some days my brain or body simply refuses to cooperate the…
Living with Multiple Sclerosis means learning to navigate a body that does not always cooperate. It means wrestling with faith, asking hard questions about God, and redefining independence. With this, there is a metaphor in my head I can’t shake.…
Three inches is roughly the width of a standard smartphone. Not a big deal, right? Sure, three inches is somewhat insignificant, that is, until you start talking about surgery and a caregiving relationship. It. Is. Monumental. That’s the length of…
Today marks nine days since Dan’s hernia surgery. From my perspective, he is healing like a champ. Each day he is a little steadier, a little stronger, and a little more himself. His pain is easing and watching his body…
The night before surgery has a very particular weight to it. It is not quite fear, not quite calm, but a tender in-between space where love and worry sit side by side. I find myself suspended in that space tonight…
This post would never end if I shared every photo from 2025. And, honestly, that wouldn’t tell the real story anyway. So, I gave myself a boundary: two photos per month. Not too little, not too much. Just enough to…
The hardest part of my Multiple Sclerosis Rituxan infusion isn’t the struggle to find a plump vein for an IV placement, or the five hours Dan and I spend in the infusion center, or even the fatigue that follows. The…
A personal essay on caregiving, marriage, and living with MS — exploring the quiet dance partners learn through trust, love and daily practice.
I never could have imagined that exactly 28 years after being diagnosed with Multiple Sclerosis, I’d find myself on a runway in Fort Lauderdale, Florida—modeling adaptive clothing, no less. And I certainly never imagined I’d be modeling adaptive clothing with…
I’ve realized after 25+ years living with Multiple Sclerosis that some of the hardest battles are the ones no one sees. And Jennifer and I both understand the challenges of managing the invisible symptoms of MS: fatigue, numbness, balance problems,…