Learning and dancing the steps of caregiving together
A personal essay on caregiving, marriage, and living with MS — exploring the quiet dance partners learn through trust, love and daily practice.
Category Blog
NEWS & POSTS
Fashion, MS and a 28-year moment I’ll never forget
I never could have imagined that exactly 28 years after being diagnosed with Multiple Sclerosis, I’d find myself on a runway in Fort Lauderdale, Florida—modeling adaptive clothing, no less. And I certainly never imagined I’d be modeling adaptive clothing with…
MS is out of sight but still on my mind
I’ve realized after 25+ years living with Multiple Sclerosis that some of the hardest battles are the ones no one sees. And Jennifer and I both understand the challenges of managing the invisible symptoms of MS: fatigue, numbness, balance problems,…
ACTOMS on campus: Sharing our MS stories with tomorrow’s healthcare pros
One of the greatest joys Dan and I have found in living with Multiple Sclerosis is connecting with college students pursuing their careers in healthcare. We’ve had several opportunities this fall to do just that, speaking virtually with College of…
Epic in-state journeys from baseball @ Comerica to lawmakers @ the Capitol
Some couples spend their weekends at home, catching up on to-do lists and binging shows on Netflix. But over the past few weeks, Dan and I have been racking up the miles across Michigan. From Dearborn to Detroit, Lansing to…
Ready to walk and roll the runway
Dan and I often say that our life with MS is about moving forward together. After all, Dan is walking, and I am rolling. We’re always moving forward side by side. Now, we’re taking that movement to a new kind…
The more MS takes, the more I speak up
Multiple Sclerosis has taken a lot from me over the past 25 years. I mean, I could’ve let that be the end of the story when it slowly stole essential things like feeling in my fingers and toes. But instead,…
Defying MS odds with help from Barenaked Ladies
“We have no choice in how MS will affect our lives, but we do have the ability to stay in the game and play the cards we are dealt. Sure, this can involve some bluffing and making it look easier…
Run, walk or roll at CMU toward a world free of MS
Dan and I always are excited to share stories about what the students from Central Michigan University’s Physical Therapy program are doing to support people within the Multiple Sclerosis community. Let’s say the next generation of healthcare professionals is showing…
Seeing through the woulds
Last week, Bruce Springsteen released his epic collection of previously unreleased songs, “Tracks II.” Listening to these recordings reminded me of how much his music has supported me through my journey life with Multiple Sclerosis and as Jennifer’s primary caregiver.…