The more MS takes, the more I speak up
Multiple Sclerosis has taken a lot from me over the past 25 years. I mean, I could’ve let that be the end of the story when it slowly stole essential things like feeling in my fingers and toes. But instead,…
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NEWS & POSTS
Defying MS odds with help from Barenaked Ladies
“We have no choice in how MS will affect our lives, but we do have the ability to stay in the game and play the cards we are dealt. Sure, this can involve some bluffing and making it look easier…
Run, walk or roll at CMU toward a world free of MS
Dan and I always are excited to share stories about what the students from Central Michigan University’s Physical Therapy program are doing to support people within the Multiple Sclerosis community. Let’s say the next generation of healthcare professionals is showing…
Seeing through the woulds
Last week, Bruce Springsteen released his epic collection of previously unreleased songs, “Tracks II.” Listening to these recordings reminded me of how much his music has supported me through my journey life with Multiple Sclerosis and as Jennifer’s primary caregiver.…
From grief to gratitude: Remembering my dad at Fenway with MS4MS
252 days. June 14, 2025, marked 252 long days since my father, Victor, passed away. What can I say? He was a wonderful, smart, funny, and kind man, and I would be remiss if I didn’t mention that he was…
Navigating pomp and unexpected circumstances
Kudos to Wartburg College for exemplifying the leadership and adaptive change it taught and instilled in me as a graduate student these past 20 months. I was among the eight students enrolled in the third cohort of its online MA…
Speaking of & advocating for MI Choice at Michigan’s Capitol
Our bright pink T-shirts simply said, “Flip the Script on Aging.” That is exactly what Dan and I, along with over 200 older Michiganians, did on the lawn of Michigan’s State Capitol on Wednesday, May 7. We were there for…
When rain keeps me in: Life with a wheelchair and MS
I really wanted to go to church on Sunday morning. Sure, I could have watched the service online from the comfort of Dan and my house, but I wanted to be at Immanuel Lutheran Church with my church family. But alas,…
From love at first sight to a focus on in-home care
When I met Jennifer, I knew she was the one. But our story is about more than love at first sight. It’s also about the vital role of in-home caregivers and the difference they make in people’s lives every single…
A Couple’s Take: Why the discontinuation of MSRP funding is a blow to MS patients
Maybe we’re misunderstanding what Congress members mean when they justify their actions as “cutting wasteful spending” and “putting America first.” Because we still are confused about what they did on March 18. For background, we will tell you that through…