Being the last ones there was so worth it

We were dead last in line to meet David Sedaris. Nearly 90 minutes later, we were reminded that some experiences are worth every bit of the energy they require.

We were dead last in line to meet David Sedaris. Nearly 90 minutes later, we were reminded that some experiences are worth every bit of the energy they require.

Sean Giblin understood what it meant to live with Multiple Sclerosis. Through listening, advocacy and a genuine love of people, he made a difference in the MS community. As we prepare to receive an award bearing his name, we wanted to share the story of the person behind the honor.

I used to think Linus had it all wrong as he waited for the Great Pumpkin. After 26 years of living with MS, I’m starting to realize I may not have given him enough credit.

More than 13 years ago, Dan compared living with Multiple Sclerosis to running straight ahead on the football field. After another weekend of yelling at the TV, he realizes the philosophy still holds.

Meeting coworkers in person for the first time made me wonder what they'd think of the physical effects of Multiple Sclerosis. What happened instead taught me an unexpected lesson about identity, relationships, and the people who truly know us.

When Jennifer and I launched the podcast for A Couple Takes on MS, we hoped it would spark honest conversations about life with Multiple Sclerosis, caregiving, advocacy, and marriage. We did not expect it to become such an important part…

The other day, I walked into a room and stopped. Not because I needed something but because I couldn’t remember why I was there. Does this ever happen to you? Moments like that—those little lapses in memory—happen to everyone, but…

‘I didn’t set out to become a caregiver.’ Like a lot of people, I stepped into the role of a caregiver because it was needed. Because it was part of loving someone. Quite honestly, there wasn’t another option. My wife,…

Three inches is roughly the width of a standard smartphone. Not a big deal, right? Sure, three inches is somewhat insignificant, that is, until you start talking about surgery and a caregiving relationship. It. Is. Monumental. That’s the length of…

Today marks nine days since Dan’s hernia surgery. From my perspective, he is healing like a champ. Each day he is a little steadier, a little stronger, and a little more himself. His pain is easing and watching his body…