Making sense of moments you can’t fully explain with MS

The other day, I walked into a room and stopped. Not because I needed something but because I couldn’t remember why I was there.

Does this ever happen to you?

Man with multiple sclerosis stands at an open refrigerator while his partner watches, capturing a quiet everyday moment of forgetfulness and life with MS
Just a moment in the kitchen trying to remember what we thought we said we wanted to make for dinner.

Moments like that—those little lapses in memory—happen to everyone, but they can feel a little heavier when you’re living with Multiple Sclerosis.

The attention quickly shifts. You begin wondering if it’s an unfortunate side effect of the disease. If something is changing. If something is getting worse.

And then comes the question: “Is this the MS or is it just something that happens to everyone?”

It’s not always easy to tell, and maybe the not knowing is what makes it stick.

Moments like this happen more often than Jennifer and I would like to, and we’ve talked about that tension before, especially when it comes to cognition and forgetfulness with MS. Check out our conversation about it in our podcast episode Taking on cognition, forgetfulness & MS.

Over time, Jennifer and I have realized that not every moment needs to be fixed.

Sometimes it’s just a pause. Sometimes it’s a glance at each other. Sometimes it’s letting go and moving forward.

This idea has been on my mind lately, to the extent that I spent more time reflecting on it in a recent article with MS Focus.

Read the full article here: Evaluating when forgetfulness is MS or simply being human.

Some days, it’s MS. Some days, it’s just life.

Jennifer and I, along with so many others living with Multiple Sclerosis, are learning to find our way in that space in between.


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