Episode 28 – Rethinking ‘But You Look So Good’
Believe it or not, “You look so good” is anything but a compliment for a lot of people who are living with Multiple Sclerosis. We understand why this has the potential to undermine and discredit the overwhelming challenges we are facing. Nobody else can see them so they don’t really exist, right? Wrong. Still, is […]
Episode 27 – Dating and MS: To disclose or not to disclose
Talking about your Multiple Sclerosis can be challenging enough in conversations with your family and closest of friends. But how do you even begin to address this reality when you’re dating? When you meet someone in person, online or through a dating app, do you disclose your MS? If no, why not? If so, when […]
Episode 26 – Total Ketchup
It’s been a long time coming, but hooray! This episode marks the triumphant return of Ryan, our spectacular podcast producer! We take this opportunity (it’s been nearly three months since we’ve recorded together) to chat about everything including: Ryan’s role as his grandma’s caregiver and his fear of doing everything wrong Our work as MS […]
Episode 25 – Does MS Define You?
In this episode, Dan and I tackle one of the toughest questions: does the disease define us?
Listen to hear how we respond to this as we dig into what it looks like for us here in the middle of the month of March, which is Multiple Sclerosis Awareness Month. Learn more about the issues we addressed at the NMSS Public Policy Conference, the reasons why you (yes YOU!) are the best story teller, and how we connect onions and moldy bread to our lives with MS.
Episode 24 – A Couple Takes on Covid
This includes nurses in hazmat suits, Jennifer going solo for a monoclonal antibody infusion, living fully masked for 10 days in our own house, and sleeping in separate beds for the first time in over 16 years of marriage.
No Episode 1/27/22
Hey there, Listener Land. We’re going to skip this normally scheduled episode time for some quiet contemplation and rest. Our normal schedule should resume with a new episode in two weeks. Thanks!
Ep 23 – MS & Covid-19 in 2022
“We look at everything through the lens of people living with Multiple Sclerosis. Covid-19 affects the entire population, but how does it affect two people with multiple sclerosis taking medication to control the progression of the disease …” Yes, it’s a new year, but Covid isn’t going anywhere. As we recorded this first episode of […]
Episode 22 – If not now, when?
Businesses don’t find success just by winging it. They succeed because they have concrete mission statements and targeted objectives that guide them to pinnacle performance. Why should it be any different for you and the goals you set for yourself? Turning over the calendar to a new year is a great place to develop a […]
Episode 21 – Holiday Hacks
A classic song of the holiday season gleefully encourages us all to believe this is “the most wonderful time of the year.” This is a great sentiment overall and in theory, but we also know it can be one of the most stressful, frantic, lonely, overwhelming, taxing and (insert your adjective here) time of the […]
Episode 20 – Feeling guilty about having MS
Do you ever feel guilty about having MS? Guilty, as though you deserve to have it or that it’s all your fault? We both have had MS for more than two decades, and we know we did nothing to deserve it or bring it upon ourselves. But, we still have these feelings more often than […]