Picture this: MS State Action Day 2023
I truly have lost count of how many times we have ventured to Lansing and met with our elected state officials, each trip memorable in its own right. But I never envisioned what May 24 was going to bring for…
Category A couple takes on MS Blog
I can’t walk, but I still Walk MS
I was an exception to an estimate the National Multiple Sclerosis Society reported about walking and MS. The NMSS stated that 80% of people who have MS experience problems with walking within 10 to 15 years of the onset of…
If my left shoe could talk about my MS
About once each month, I write an online essay of Exclusive Content for the Multiple Sclerosis Foundation’s MS Focus Magazine. These pieces of personal prose relating to my life with MS are developed to provide readers insights, perspectives and tips…
Inside accessible fashion: My modeling moments
It was dark inside Finch Field House. Loud cosmic techno music was blaring. Spotlights were shining through the darkness. The stage manager peered beyond the curtain, waved her hand, and whispered, “Go!” That’s exactly what I did. I rolled onto…
Accessible fashion and my runway bride
Yes, I am married to a model. All of the planning, discussing and fittings are completed, and Jennifer will make her mark on the runway at the 25th Annual Threads Fashion Show this Saturday on the Central Michigan University campus.…
Can’t spell music without MS
Dan and I often talk about the power music has in helping us through our life with Multiple Sclerosis. From meaningful lyrics, haunting melodies, hard-driving drums or guitar solos, music just gets us and meets us right where we are.…
MS activism: 3 goals. 2 capitols. 1 week.
When things don’t seem to go their way, people often find it’s easier to ignore it, mutter frustrations under their breath, share thoughts with friends, and post opinions on social media. We have been there many times ourselves. But other…
MS, remote work & leveling the playing field for people with chronic conditions
I have experienced firsthand the benefits of working remotely for nearly five years as a senior writer at Ruffalo Noel Levitz. This is why my former colleague Kristi DePaul – now the CEO of Founders – didn’t have to ask…
Rarely have I seen MS like this
Dan and I often say that we are one in a million. This tongue-in-cheek statement loosely refers to the fact that there are nearly one million Americans living with Multiple Sclerosis, and each one of us is one of that…
The weighing is the hardest part
When is the last time you weighed yourself? How did you do it? For most people, it’s a matter of stepping on a scale and looking at the number. But for Jennifer, who no longer can stand on her own,…