“We aren’t looking for answers yet. We’re learning how to sit with the questions.”
As we prepare for an upcoming appointment with our neurologist, a simple question from Jennifer sparked a conversation neither of us expected to have.
What if Dan’s MS has progressed?
To be clear, nothing has changed. We haven’t received any new diagnosis, and Dan has not been reclassified from relapsing-remitting MS to secondary progressive MS. But after nearly three decades of living with Multiple Sclerosis and noticeable changes in his gait and energy levels, it felt like an important conversation to have.
In this episode, we talk openly about our fears, questions, and uncertainties that can come with long-term MS. We discuss:
- What prompted us to start talking about disease progression before our upcoming neurology appointment
- How physical therapy has revealed both strengths and challenges in Dan’s mobility and endurance
- Jennifer’s experience transitioning from relapsing-remitting MS to secondary progressive MS years ago
- The realities of caregiving, aging, and adapting to changes in ability over time
- Why community, conversation, and preparation matter when facing difficult questions about the future
More than anything, this episode is about facing possibilities without letting them define us. Regardless of what happens at our next neurology appointment, we are still the same people we were before we walked into the office.
We hope you’ll join us for this conversation, especially if you’ve ever wondered what the future might hold for your MS or how to navigate the uncertainty that comes with living with a chronic illness.
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