As MS activists, we are very vocal about improving our lives and the lives of the nearly 1 million other Americans diagnosed with Multiple Sclerosis. But here’s the reality: We know from nearly 45 years of combined experience with this disease that MS advocacy is about more than connecting with lawmakers and community leaders.
This is why we were so grateful for the opportunity to partner with Healthgrades to develop this essay – The Importance of Being Your Best Advocate With MS – to encourage people to be their own best advocate:
“… Think of it like this: there are countless uncertainties and unknowns when you’re living with MS. Dan and I feel like we’re constantly asking ourselves questions like, ‘Will my hands ever stop feeling numb?’ ‘Am I ever going to enjoy another afternoon relaxing in the summer sun?’ or ‘When will my legs work so I can walk again?’ If we don’t always know the answers, why are we so quick to assume other people will magically know what we’re thinking, how we’re feeling, or how to improve our lives with this chronic illness? That’s why it’s up to us to advocate for ourselves. And while it can seem frustrating at times, with practice and experience, it can start to feel empowering. …”
To read the full article, visit Healthgrades.