Episode 55 – Taking on handling the heat & MS
Heat is akin to kryptonite when it comes to many people who are living with Multiple Sclerosis. In fact, studies have shown that this “many” accounts for 80% of us all, including the two of us. Summer officially launches on June 20, and with this season of fun and sun comes heat waves and temperature […]
Episode 54 – Taking on MS & inclusion with Julie Stamm
Dan and I have lived with Multiple Sclerosis for more than two decades and have had some incredible opportunities courtesy of the chronic illness. We’ve advocated in Washington, D.C., written and published a book; rode in a handicap accessible hot air balloon; and travelled throughout the country sharing our story. Along the way, we’ve met […]
Episode 53 – Taking on MS & mourning sickness
Experts often describe grief in five or seven stages. If only life with Multiple Sclerosis could be so efficiently contained. Shock. Denial. Anger. Bargaining. Depression. Testing. Acceptance. This all can happen each day before we get out of bed. Yes, we are eternally optimistic and look on the bright side of things under the worst […]
Episode 52 – Taking on PT & exercise with Heather Schoen
This an episode that got very personal for the two of us, but Jennifer took it even more personally. What an amazing moment to have a candid conversation about physical therapy, exercise and Multiple Sclerosis with Heather Schoen – the first physical therapist Jennifer saw shortly after she was diagnosed with MS more than 25 […]
Episode 51 – From the runway to Walk MS
There is a lot of momentum and several firsts in this episode: • It starts with Jennifer sharing insights into her experiences modeling in Central Michigan University’s Threads Fashion Show that featured accessible fashion for the first time. • It ends with the first time we feature a special guest – 8-year-old Maximus Miedema – […]
Episode 50 – Taking on Threads & accessible fashion with Ian Mull
Talking about a person in a wheelchair likely isn’t the first thing people think of when discussing fashion shows and models on the runway. Jennifer will change all of this April 15 when she is among the more than 100 models who will strut their stuff at 25th annual Threads Fashion Show on the Central […]
Episode 49 – A Couple takes on 2 Capitols
One of the biggest ways we have faced off with our Multiple Sclerosis is using our voices to make positive changes as MS activists. This includes our recent trips to the nation’s Capitol in Washington, D.C., and to Michigan’s state Capitol in Lansing. All within the same week. Join us for this episode to learn […]
Episode 48 – Taking on MS Disrupted with Kathy Chester
Step aside, Multiple Sclerosis. You’re getting in Kathy Chester’s way. To say Kathy, who has had MS for 20+ years, is on the move is an understatement. She’s on a mission, and we recently caught up with her to chat about what drives her to keep herself and others with MS moving forward. Join us […]
Episode 47 – Taking on Rare Disease Day
Imagine if we all took the time to go beyond what’s comfortable. This is exactly what Jennifer did when she investigated whether multiple sclerosis is considered a rare disease. Turns out it is, and just like that, our disease-related community is no longer defined by the estimated 2.5 million people worldwide who have MS. Jennifer […]
Episode 46 – Taking on real-life MS with Tyler Campbell
We can’t say enough about Tyler Campbell and the impact he is having on us and members of the Multiple Sclerosis community. You need to hear him for yourself. We are so honored to share with you in this podcast a lively heartfelt conversation we had with Tyler – an author, public speaker, MS ambassador […]