Episode 82 – Distracting my MSelf
Looking for a way to overcome your chronic illness? Fuggedaboutit! Seriously. Forget about it. Easier said than done, right? Jennifer recently reflected on this when she wrote: “I am aware of my Multiple Sclerosis every single day. The disease cannot be avoided, as it is everywhere in my life, from its treatment, symptoms, and progression. […]
Episode 81 – Taking on Cadense Adaptive Shoes & Tyler Susko
Tyler Susko, Ph.D., knows a thing or two about walking a mile in the shoes of people with walking difficulties. So much so, he is making their experiences better… one step at a time. Tyler is the Chief Technology Officer and Founder of Cadense, the company that’s revolutionizing the way the world thinks about adaptive […]
Episode 80: Taking on talking to children about disabilities
Continuing our focus on Disability Pride Month, I started thinking that we all are different, but is disability just another form of different? It’s one thing for an adult to stare at me in my power wheelchair and make unintentionally insensitive comments such as, “I wish I had one of those today!” or “Do you […]
Episode 79 – Taking on Disability Pride Month
Disability Pride Month is celebrated every July. Pride in disability? For real? Yes, for real. As A Couple Takes on MS, Dan and I are proud, but it is complicated. Am I proud that I no longer can walk and the whole world can see I truly am disabled because I need to use a power […]
Episode 78 – Taking on cognition, forgetfulness & MS
In Episode 77, Dan (and he admits it) was struggling cognitively. But was his scatteredness because he was tired? Age? Doing too much? Living with Multiple Sclerosis? In response to these questions, we can answer potentially, maybe, possibly and perhaps. It’s hard to tell what the cause was, but MS seems to lead the pack […]
Episode 77 – Taking on Step Therapy Reform & the Crap Gap
Not every person could seamlessly tie together the concepts of Step Therapy Reform and the Crap Gap. You just need to leave it to A Couple. Because to us it makes perfect sense to connect: • A bill in the Michigan House of Representatives that will ensure people with Multiple Sclerosis can get the medications […]
Episode 76 – Taking on accountability
So often it seems the more you do, the harder it is to keep your head above water. You tell yourself you just need to get through this task. This morning. This day. Phrases like, “It can wait until tomorrow,” “I don’t need to ask for help,” and “I got this,” fire up your sense […]
Episode 75 – Taking on A Hot MS
Since her MS diagnosis in September 2019, Brittany Quiroz—also known as a “A Hot MS”— has been a powerful voice in the Multiple Sclerosis community. Brittany is an author, speaker, MS activist and a talented singer/songwriter. Whew! Did we say she’s a powerful voice? She figuratively AND literally is! Her recently released single “Never Have My […]
Episode 74 – Coming to ‘terms’ with MS awareness & living
You say flare. I say exacerbation. Or is it relapse? Whatever you call it, MS is progressing. All it took was the recent Healthline article Is an MS Flare-Up the Same as a Relapse? to make us remember that contrary to wearing orange and observing March as MS Awareness Month, increasing understanding of this […]
Episode 73 – Taking on MS research, telehealth & activism
Always believe in the power of your voice and your story to influence change. Whether it’s at the local, state or national level, your experiences are valuable in making things better for you and many others dealing with the same circumstances and situations. We were honored that we had the opportunity to attend the National […]